Chang, Kate W-C., Amy Austin, Jan Yeaman, Lauren Phillips, Anna Kratz, Lynda J-S. Yang, and Noelle E. Carlozzi. “Health-Related Quality of Life Components in Children With Neonatal Brachial Plexus Palsy: A Qualitative Study.” PM&R (2017).
Abstract: Currently, no published, validated patient-reported outcome (PRO) measures of health-related quality of life (HRQOL) exist for use with neonatal brachial plexus palsy (NBPP). NBPP is a debilitating condition that occurs during the perinatal period, resulting in paralysis/paresis and loss of sensation in the affected arm. Commonly used NBPP measures are not comprehensive and do not fully account for clinically meaningful changes in function or progression of the disorder.
